What is Histiocytosis? Histiocytosis is a rare blood disease that can be deadly or cause life-long disabilities. Patients are often treated with chemotherapy, radiation and bone marrow transplant. This disease affects all races and ages, but is especially prevalent in children under 10 years old. Because histiocytosis is so rare, it receives no government funding for research. The HAA receives most of its money from events such as this one, started by family and friends of those affected by the disease. The Association The Histiocytosis Association of America (HAA) is an international partnership of parents, patients, physicians, and friends bound together by the mutual interest in histiocytic disorders. In an effort to compensate for the limited information on the disorders and the small number of individuals and families dealing with them, the Association provides a variety of educational and emotional support programs to its members as well as other interested parties. In addition, the Association promotes scientific and medical investigation into the histiocytic disorder through its research program with the aim of establishing better treatments, a cure, and prevention of the disease. |
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